TEAM AAA (name is inspired from the first letters of 3 members)
Team captain: Catlinh Nguyen
Team AAA is Group 8, comprising of 8 following members:
- Catlinh Nguyen majors in Computer science and Psychology. Catlinh loves to graduate with a degree in both subjects and works in the combined field.
- Alexia Cortes majors in Psychology and Philosophy and has a passion for both.
- Aster Bailey is 19-year-old. This is Aster’s second year at De Anza, majoring in Computer science.
- Jordan Pascual majors in Business. Jordan is an 18-year-old freshman at De Anza. This class is Jordan’s first psychology class as well.
- Phyu Phyu Thant majors in Nursing and Psychology. Phyu Phyu loves to learn human behavior and psychology.
- Andy Nguyen majors in Nursing. This is Andy’s second psychology course, also second year at De Anza.
- Alex Estrada majors in Psychology.
- Esmeralda Villatoro goes by the middle name Vanessa. This is Venessa's second year at De Anza, majoring in Psychology. Venessa is trying to get certified to be a Behavior Technician at the moment.
Stigma About Autism Across Cultures
People who suffer from autism often have to deal with the stigma that comes along with autism. I am going to be focusing on the children that suffer from this stigma and how they suffer. Most of the misconceptions and stereotypes about autism are a result of society and social media. Children aren’t the only ones that are impacted by the stigma of autism, the people around them, who care for them, and many more are impacted as well, which is why we, Group 8, chose to focus on children seeing that it not only affects them, but others around them as well. The parents of these children start to internalize all of these negative things from society's views, stereotypical perceptions, misconceptions, and discrimination, and they start to feed into these lies and believe them.
In Burma, there are many reasons that the autism kids get stigma. Autism kids do not have a chance to go to school since they were young. Some schools did not accept the autistic kids because the school did not have well trained teachers for the autism kids. The autistic kids were facing discrimination for their education.
According to the Myanmar Autism association Yangon stating that “there are people with autism in all parts of Myanmar, there is no exact census because some of the family did not make a report. After 2000, the number of children with autism has gradually increased. Some preschools accept the autism children who have mild conditions, but some schools do not accept them. Only in Yangon Region, there were 8 schools that accept and train autistic children but in other cities and towns, urban, village did not have yet. Also lack of teaching materials and the professional well-trained staff for autism children. Only a few people who are the teachers of autistic kids can afford to go overseas and get the certification or degree for a specialty for autism because they had to spend their own expense.”
There are only special education schools for children under the age of 12 with autism but did not have for adult autism to stand in life through vocational education. Minorities of autistic kid’s parents are able to educate their children in technology advanced countries. Many of autistic population and their families were facing difficulties and challenges in their life.
In Vietnam, people often see autistic children are either spoiled kids or dumb, depending on one of the two most common problems in autism: behavioral challenges and delay or issues with speech.Autistic children, due to limited expressive language, often have behavioral issues specially in public places. The stigma is they are spoiled, growing up in a laissez faire family and need a good spank to be normal. If the behavioral issues are extreme, they are seen as spoiled children with anger issues. Other families with kids often try to stay away, keeping a safe distance.
Autistic children who are non-verbal or language-delayed have a different stigma. People think they have low IQ and object to their being in a normal classroom. They think it may impact their children's learning. Many years ago, the stigma about autism was worse. People think it can spread like a disease. Fortunately, that stigma is mostly gone now.
In America, there are many stigmas associated with autism. One common issue is exclusion and isolation, people with autism are often left out simply because they are seen as different. The lack of understanding of their needs and actions leads to disapproval and judgment that is wholly undeserved. Not only this, but people may also stereotype and harass them as well. But all of this stems from an intolerance to difference along with misunderstandings. A possible way to combat this may be to educate people about autism. Specifically, it would be useful to teach about autism in schools to decrease misunderstandings. Having a unit about neurodivergence among other things would also help make things more accessible. Additionally, it would be useful to have changes made to systems in correlation to what may be needed to make people’s lives easier.
In an article by Yondale Loftus, it says “some people are more willing to risk the chance of their child being infected with a possibly lethal disease—rather than the small (or, according to some research, nonexistent) chance of “getting autism”.” This really shows how much of an effect society has on the views of autism, it can create these misconceptions that people believe and can lead to other problems. It also says that a child with autism can do very well if they are treated at a young age, in order for the child to get treatment they would have to be diagnosed with autism before they can start the treatment. This may not sound like a big deal to some people, but unfortunately this results in attaching this stigma of autism to this child that modern day society has created. As a result, parents are scared to get the treatment due to the fact that their child will have to deal with the discrimination, stereotypes, misconceptions, and many others.
This goes to show just how powerful this stigma that has been placed on autism
is, it can cause parents to fear getting their children treatment which could have a huge impact on their life permanently. For example, a kid who is has autism and can do very well in the future if he gets diagnosed and receives treatment, but his parents refuse because of the stigma ultimately resulting in the kid not be able to receive treatment and get better and he may be
permanently stuck the way he is for the rest of his life based off one decision that was heavily influenced by societies stupid perceptions.
The question is, how do we get rid of this stigma on autism. When I think about this I think it can be done, but it’s going to be very hard and it’s not going to happen all at once, nor is it going to be all gone. There will always be a couple stupid people who will stick to these false concepts about autism for horrible reasons and that can’t always be helped. If we can get the majority of the people to see that their perception of autism is very wrong, then that is a huge step forward in the right direction. I think in order to do this, schools should have talks about autism and its stigma and just teach students about this. There should be more social groups that promote getting rid of this stigma and telling people why, just speaking out in general. Social media is a huge part of modern day society and can play a very impactful role in spreading the word, by posting about and having people share it. I’m not saying that this will get rid of the stigma completely but in order for change to happen it needs to start with the people. Once the word is out there and the stigma of autism is well known, then it will make it a lot easier to change society's perception of autism and overcome this stigma that has been associated with autism for the longest time.
There are many stigmas surrounding autism, however there are ways to destigmatize. “86% - 91% of US citizens achieved adequate autism spectrum disorder knowledge in diagnosis/symptoms, etiology, and treatment. Many people with autism don’t have physically noticeable indicators that they have autism however they may get mistaken for lacking eye contact, not responding, or unusual behavior, which may cause someone to think they are being rude. "It is this combination of pervasive disability and apparent physical normality that gives the stigma experienced by families with autistic children its unique quality," Mr. Gray wrote in 1993.3
There are so many different stigmas surrounding autism around the world, for example, the researchers noted that stigma may keep families from pursuing autism diagnoses and treatment. "…Koreans consider autism to be a stigmatizing hereditary disorder; autism (chapae) impugns the child's lineage on both sides and threatens the marriage prospects of unaffected relatives. As a result, autism is often untreated, misdiagnosed as an attachment disorder, or unreported in records."
We think more people need to realize that people with autism are just as entitled to a good life without feeling excluded over something they have no control over.
Autism could be personal as a team member wrote: “As someone with a family member who has autism I saw firsthand the stigma surrounding autism. Justin is 10 years old and nonverbal, he enjoys loud noises but can be aggressive at times. From a young age Justin loved loud noises but was very isolated, for a very long time his mom was in denial. It’s as if she was ashamed to even consider that maybe there was something wrong. For many people it’s the same, the feelings of shame or wrongdoings. Although we’ve been able to slowly break away from that stigma it is still an issue.”
Let’s look back around 50 or so years, helping people with disabilities wasn’t even an option. They were looked at as “insane” and were most likely to end up in an institution. Nowadays thanks to technology and studies we are able to offer more opportunities and help for those with disabilities. However, it seems as if a stigma of wrongdoing falls on the parent as if their child's bad behavior is somehow their fault. Which causes people to fall back into a cycle of feeling ashamed or embarrassed due to their child's autism. Luckily because of our many resources we are able to help parents better understand their kids. Helping to slowly break away from stigmas and proving to others that these kids can become independent adults with help and early intervention. There is nothing wrong, they just need extra help and with things such as Behavior Technicians we are now able to help even more.
Through many studies regarding individuals diagnosed with autism, it shows that it is common for those to be actively “stereotyped, judged, and discriminated against.” For autistic people to go through this stigma causes them to have internalized stigma, causing them to value themselves less and have fragile mental health. As for “cures” and “treatments”, there really is no cure to eliminate all cases of autism. There are however treatments towards widening and enhancing all functions and abilities that may have been altered due to having autism.
One way to combat the stigma around individuals with autism is by increasing their appearances online and giving them more of a social presence online, showcasing that autistic people are common and normal which is such a dehumanizing thing to even have to prove. Another is increasing their resources and education, allowing more autistic people to be welcomed in the professional world.
Source
https://www.autismspeaks.org/vietnamese-resources
https://pubmed.ncbi.nlm.nih.gov/22545635/
https://www.facebook.com/mangluoitukyvietnam/
http://www.ttnv.org
https://sparkforautism.org/discover_article/stigma-autism/
https://pubmed.ncbi.nlm.nih.gov/34881514/
https://www.liebertpub.com/doi/10.1089/aut.2021.0005#:~:text=To%20reduce%20stigma%20people%20should,Last%2C%20they%20should%20support%20neurodiversity
https://www.autismparentingmagazine.com/autism-stigma/
https://www.sciencedirect.com/science/article/abs/pii/S1876201819303740#:~:text=Autistic%20children%20often%20confront%20stigma%20for%20their%20stereotypes%2C,who%20are%20close%20to%20them%2C%20particularly%20their%20parents.
The Stigma of Autism: When All Eyes Are Upon You | Interactive Autism Network. iancommunity.org/ssc/autism-stigma. Accessed 22 Oct. 2022.
https://journals.sagepub.com/doi/abs/10.1177/1362361319900839
https://iancommunity.org/ssc/autism-stigma
END-OF-TEAM-ESSAY